26 Responses to “Kate’s Story”

  1. What an amazing story you’ve shared with us today. I can’t imagine how stressful it must have been over the years watching and wondering what was causing your “baby” to have these seizures. I don’t know anyone personally who has suffered from epilepsy, but what little I know about it is enough to know that a cure is needed. Sherry, you have shared so much of yourself and your talents with me on a daily basis that I felt compelled to make a pledge towards Kate’s Bug Bug Team. How wonderful that you, your girls, their friends, and your friends, are walking the walk, not just talking the talk. Thank you for sharing your story, and all of your talents with us, each and every day. Best of luck in your fundraising efforts and on your walk.

  2. Kate & Mallory, y’all are lucky, lucky girls to have a Mama like Sherry! And Sherry, you’re *such* a good Mama. I’m so proud of you for getting out there and helping raise money that will go towards researching a cure!

  3. I am more than happy to help out. You can count on me for any thing I can do to help you.

  4. TFS your story Sherry. I have a friend who’s son (hmmm….he must be 9 or 10 now) started having seziures when he was 4 (or they were noticed then) Like you said, a seziure doesn’t have to be the grand mal type (although, he did have some of those too). Many of his seziures were “staring into space”, some were slight twitching….some affected his walking or speech (he was having over 20 a day, not all the same type!) I can’t imagine how scary it must be to find your child unconscience or watching them go thru this.
    I’ve lost contact with this friend (long story) but I really need to follow up on her and see how everyone is currently doing.
    I will also look into your daughter’s walking goal and see if I can help!!

  5. Sherry, Bless you and yours. The uncertaintity is the worst. I went thru this with my 3rd daughter. The anxiety you feel is a natural one, we all have it and it will never go away, but the advances in medicine are such that this is no longer a hidden closet disease. My daughter is now 47 and has been diagnosed as petit mal in remission. We don’t know if she will ever have another seisure but all the family is on alert. But I do know how it is with you and yours.. God speed to all and remember “HE will not give you any trials HE does not feel you can handle. thoughts and prayers….MaryAnn

  6. Hi Sherry
    I will be happy to make a donation in honor of your daughter & your family.
    Being an RN in a level 1 trauma center here in Cleveland and having worked at two Children’s Hospitals (Rainbow babies & Akron Children’s Hospital) i have had the wonderful opportunity to learn about epilepsy and the huge array of seizures that can happen. I’m glad she is doing so well and becoming a teacher, what a wonderful profession she has chosen. Good luck to her and although the medications make her feel strange and have side effects, they are most definately worth taking. i still struggle with getting my sister to take her medication daily!
    Enjoy the weekend!
    warmly,
    becky

  7. Thank you for sharing Kate’s story! You are both so lucky to have each other!

  8. Having a son with epilepsy and other health issues, I appreciated reading your experience with the disorder. I admire your daughters ambition and hard work to graduate with top grades.

    I hope you have good weather during the walk.
    And there is no mistaking she is your daughter, she looks so much like you.

  9. I wish I was computer savvy. We (Hanna Girls) need a little graphic on our blogs and a place to donate money electronically so it goes into an account for her fundraising. I have seen these things on other people’s blogs, but don’t know how they got them or how to set it up.

    If something like that were to happen, we could have our readers (Ha! I have about 3) each donate a little something easy peasy.

    Yeah, I am full of ideas, just not the means to bring them to reality.

  10. Duh. I just saw the link on the side. looks like you have it all figured out. Hope you don’t mind, I just posted on the DT forum and encouraged donations from those who could.

  11. Thanks for sharing Kate’s story with us Sherry.

  12. […] each and every one of you who have made pledges to The Bug Bug Walkers, Kate and/or me, for the 2008 Epilepsy Walk Around Kentucky. I have been so overwhelmed by your outpouring of support. Actually, I’ve sat here with tears in […]

  13. […] the Bad Side”.   Rather than try to tell the story myself, here’s the link to “Kate’s Story“, as told by her mom, Sherry […]

  14. Thank you for sharing your story. Seizures are definitely a life changing thing. I am so thankful there is medication to stop these. Our daughter Jaclyn would be dead without the meds.

  15. Thank you for sharing Kate’s Story. My 8yo daughter was diagnosed with epilepsy one week before her 4th bday. What a journey it has been. I see so many similarities in our beautiful girls stories…

    Much love and many blessings to the both of you.

  16. What an amazing story, Sherry. I don’t know anyone with epilepsy and I learned so much. You and Kate are an inspiration!

  17. Sherry, thank you for educating us about epilepsy. My late SIL’s sister whom I am custodian of has this and she has had it since she was about 3 years old and she is now 60+. It is completely manageable if you take your meds correctly. I wish you much success in your walk for this wonderful cause.

    Pinky

  18. Sherry-
    Thank you so much for sharing your story. I was in tears. Our middle daughter, like yours started having seizures at 14. She had 3 grand mals several months apart and now just has petite mals which are controlled by meds. She is now 17 and for the most part seizure free. We went through two years of dark depression and change in personality until the found the right meds. She lost 4 years of memory due to the meds and has to work extra hard to remember things where before she just had to glance at them once. She isdoing well now, back to her own kooky self and looking forward to her senior year and college. All the best for you and your family on this walk!

  19. My sister takes meds to control her petite mal seizures. She’s never had a grande mal, I cannot imagine the panic you must have felt, Sherry.

    I’m inspired by Kate, who took the initiative and learn about seizure disorders and found the walk and got the family involved, good for you, Kate, actively seeking to better your situation and everyone else in similar situations! Best of luck in reaching your goal.

  20. Oh, Sherry, my heart goes out to you and Kate. What a mom you are to share such a personal story in order to raise awareness and funds. I will be more than glad to make a contribution to the foundation in Kate’s name. You go, Girls – walk the walk!

  21. Good for you for sharing Kate’s story! I have a seizure disorder too. I am 42, and have been seizure free for about 20 years. (It pays to read the side of your meds bottle and not drink alcohol – I just eat dessert!) I have a very very normal life! I am able to drive and get my kids where they need to be. I have 2 children, that were born while I was on my meds. The oldest went through withdrawl, the youngest didn’t. Strange! The only difference I can tell about myself now is that I tend to get tired easily. Is it the meds or is it that I am getting older? Best of luck to both of you on your walk!

  22. Thank you for sharing this Sherry. I know very little about epilepsy so you are certainly helping to raise awareness! I cannot imagine having to do CPR on my own child – that must have been so completely terrifying. I’m very glad to hear Kate has been seizure free for over a year, my very best wishes go out to her! Best of luck at the walk!

  23. I have several friends who suffer from epilepsy — and so few people like to “talk” about it! KUDOS to you for sharing what is obviously close to your heart, Sherry.

    I wish you HUGE success (and huge bucks!) on your walk! GO SHERRY GO! 🙂

  24. […] would like to take a minute before I go today, to thank each and every one of you who have read Kate’s Story and made a donation to our 2008 Epilepsy Walk Team, Bug Bug Walkers. Your comments, generosity and […]

  25. I’ve just come to your story from another blog, but had to stop and comment. Several years ago I began my journey down this scary road myself, having my first seizure at the age of 41. Some days I would have as many as 60. I am glad to say that medication keeps then somewhat under control now, but my brain and body just don’t quite work the same as they used to any more. My stamping business that used to include customers from all over the world, is just now starting to get going again, but no where near the level of what it once was.

    And yet, we are all surrounded by a most amazing group of people called family and friends who will help us get through absolutely anything. And best yet, we are loved by a most gracious and mighty God who walks with us through the valleys just as He stands with us on the mountain tops.

    You and your daughter are not alone! Take comfort!
    Jennifer

  26. Hi Sherry,

    I was browsing through your blog, looking at all the wonderful work you do when I saw this entry. I also suffer from epilepsy. I have what they call TLE…Temporal Lobe Epilepsy. Left side is affected for me and they still can’t quite find the proper medication to control it. I still can’t drive and even though the partial seizures have happened less frequently, I’m praying for the day where they will never happen again.

    Your daughter seems to have an amazing mother who went to great lengths to find out what was wrong. Kudos to you. All the best to you and your family and I hope Kate is well.

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